neuroendocrine up-date
It's been a while since I posted an up-date. October 17th is my husband's one year aniversary of his lung cancer diagnosis. He is on home hospice care now. When he was diagnosed with stage IIIB lung cancer our lives stopped. From the beginning doctors did not give us much hope but they said they would try everything possible. So he did 6 rounds of chemo, 36 radiation treatments. In the beginning the treatment worked good the tumors responded well then by the forth treatment the tumors stopped responding to the chemo and started growing again. Then radiation began. The radiation may have slowed the growth but the tumors still grew. Then the doctors told him about a study drug, I didn't want him to do it because they only gave him a 20 percent change of extending his life a few more weeks or months I wanted quality vs quantity, After 2 rounds of the test chemo they told him the tumors continued to grown so he could not participate any more. Then they told him about another chemo that gave him a 10 to 20 percent change of extending his life a few weeks or months. So he did one treatment, which had no effect on the tumors however, made him very sick. It was the mildest of the treatments and it made him the sickest because his body couldn't handle the treatment any more. Now he is on home hospice. Unfortunately, since treatment started we have had no quality of life. My children and I feel like our lives were over last October. The kids and I have been through counseling to help us cope the best we can. My husband insists on dieing at home but our daughter who is 14 is very up set at the thought of him dieing at home and that she may find him. So I am trying to get him to consider as things get closer to the end going into a hospice facility. I have heard a lot of good things about the faculity ! he would go to and I would be there all the time. I just don't want my children to find and have to live that for the rest of their lives. I want to honor his wishes the best that I can but I also have to think about my children they are only 14 (twins). Which is a tough age any way without all this. What should I do. kzfamily