Looking for Pancoast Tumors patients or caregivers

Hi , I am new to this site. I have been all over the internet looking for other people or their caregivers that have this type of lung cancer....I have stage 3b and would like to know what to expect later down the road....currently doing chemo every 3 weeks of carboplatin and taxol. Are there any others out there with this cancer and any information ? Please help.....thank you