Granulosa Cell Tumor
Hi Everyone,I am new here. In August of 2007, a mass was found on my ovary. After being told it was probably nothing, I had surgery in September to remove it. When the lab reports came back, I was told it was a granulosa cell tumor. My gyno said I needed to have a complete hysterectomy and in November, I had surgery again. I did some research on GCT and everything I found told me it was a form of cancer. When I asked my gyno if I had cancer, she said no. She told me I had to be watched closely over the next 5 years but it probably wouldn't come back. When I asked her about staging, she said it didn't apply to me because I didn't have cancer. When I asked about blood tests, 'nope', didn't need them. She said I could speak to an oncologist if I wanted to. I asked her why I needed to see an oncologist if I didn't have cancer and she said 'for a second opinion only.' I chose not to speak with one because I trusted everything she said. However, I still felt as though something wasn't right.Fast- forward to now, one year after my initial diagnosis and first surgery. I decided I wanted to see an oncologist so he could tell me 'straight-up' that I didn't have cancer. Needless to say, those weren't the words I heard. After a year of thinking I didn't have cancer, I found out that, not only did I have cancer, it was very rare. I guess I always knew, deep down, what I had but it still came as a shock. I have finally stopped crying.My oncologist told me the gyno was probably trying to save me the trauma of the 'c' word, but how dare she!! I had a right to know! Part of me is so mad I just want to slap her and the other part of me says, 'at least I know now and that is all that matters.' I am not sure how I will handle this when I have to see her again.My new doctor, is wonderful. He did an Inhibin test and I am an! xiously awaiting the results. I just had a CT scan and all looked good. I have to see him again in 6 months for more blood work and an exam.I am very happy to have found this site. I would love to hear from other GCT patients. I was wondering if anyone could give me some details on the Inhibin test. I want to be ready when I get the results, but I don't know enough about it. I would also like to hear about some symptoms of relapse. When I first got sick, I was so blasted tired I could hardly move. I think the more we know about, the easier it is to listen to our body. I have decided to be pro-active instead of reactive, and I welcome any advice.Thanks for taking the time to read my story.